It is completely normal to feel you need emotional support as you deal with living with endometriosis. Endometriosis affects more than just the physical body and can have a profound emotional impact on women and girls living with the condition. Don’t be afraid to ask your partner, friends or family for their support when you feel upset or confused. It is all too easy to shut your loved ones out because you don’t want to burden them, or because you think they won’t understand. If you feel able to talk to them, you may find that they are a source of great comfort and support.
Additionally, your GP should be able to refer you to a counselling service. Psychologists and counsellors can play an important role by helping women and girls cope with the feelings of confusion, disbelief, chronic pain, infertility, and frustration that often accompany this disease.
The Endometriosis UK support group plays a vital role in helping girls and women learn to cope with endometriosis. Local support groups across the country give those affected by endometriosis the opportunity to meet and share their experiences with others who understand their situation; the Endometriosis UK helpline provides information, as well as emotional support and a listening ear; and the online community allows women to connect with other endometriosis sufferers in a safe, online community.
Looking for medical advice?
Please be aware that our support services are unable to provide medical advice and can only connect individuals with other women who can only talk about endometriosis based on their own experience. If you need medical advice, please contact your GP or endometriosis specialist.
As a charity, Endometriosis UK relies on support from people like you. If you found this page helpful please consider making a donation. Thank you.
The Helpline is operated by trained volunteers who have a personal experience of endometriosis. They are not able to give medical advice but can talk through your issues and consider options to overcome them, or just provide a friendly listening ear.
Helpline Number –
Helpline Opening times
The Helpline is staffed by volunteers who give their time for free. As a result, the days and times of the Helpline opening hours are varied due to their availability.