The Girl Behind Project Patchwork

Endometriosis Awareness Month

With March being Endometriosis Awareness Month it is crucial that we continue to fight and raise awareness about this awful disease. Endometriosis is an illness the community still does not quite understand. Women are not receiving proper diagnoses, and not many communities exist for us to go to for help with our illness.

Following my diagnosis, I was lost. I did not know who to turn to, what my next steps would be, and how I was ever going to deal with a permanent illness.

After a few days of sulking, I went to Instagram. I typed endometriosis in the search bar just to see what would show up. Low and behold, thousands of women just like myself popped up. As I began adding each and every one of them, I felt a bit relieved. Relieved in a sense that I was not alone.

Each woman’s story was unique in their own way. I quickly learned all about my illness and grew such a great community of friends.

Wendy England

Here is Wendy England, the girl behind Project Patchwork.
Wendy England, the girl behind Project Patchwork. (Photo by Camilla Andrea)

Wendy England helped me understand just how debilitating this illness could be. I quickly became intrigued by her story and followed her every move.

Wendy spent years attempting to convince doctors she was sick. In and out of many appointments, she left each one feeling deflated. Still sick, still in pain, and still not knowing what was going on with her. Doctors would laugh in her face when she would mention the thought of endometriosis being a possible factor. After 16 years of fighting, Wendy was diagnosed with endometriosis, adenomyosis, and ruptured cysts.

Unfortunately, by that time, Wendy’s endometriosis was at Stage IV. Stage IV is an advanced stage, which meant her uterus was attached to her bowels and she would need extensive surgery. Wendy chose to have a hysterectomy — the only known cure for adenomyosis (at the cost of removing the uterus) — at age 32. Childless and now without a womb, she hoped for some comfort.

She quickly found her suffering was not yet over. Shortly after surgery, she was back in the hospital. Although doctors were not concerned, they ran scans and examinations. They found that Wendy was suffering from two fistulas between her bladder and vagina from a surgical mistake. For months, Wendy rocked a new accessory: a catheter.

As I followed Wendy through her rough journey, I noticed one thing: Her beautiful smile remained. She created an Instagram account called @endoeducation, which offered support and a place for women to share their endometriosis stories. I quickly became a part of that community.

It was clear Wendy was on one mission and one mission only: to find a safe place for women suffering just like her and me, to talk about their experiences living with a chronic illness, and to seek help and support.

Project Patchwork

Project Patchwork is a safe community for women suffering from endometriosis to go and find the support they need. (Courtesy of Wendy England)

Wendy created Project Patchwork a safe place for women suffering from chronic illnesses to be their selves, connect with other women, and share their voices

Project Patchwork is the exact type of community we sufferers need to see and is run by the most caring, strong, amazing woman.

What Wendy went through for so many years, is what she is trying to prevent from happening to other women. Her vision is to help as many women suffering as she can. With her big dreams and even bigger heart, I know she will continue to make her vision come true.

You can find Project Patchwork at

https://www.edp24.co.uk/news/health/project-patchwork-kickstarter-forum-wendy-england-hidden-conditions-1-5421622

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